Monday, 19 April 2010


I 'checked out' of hospital last Wednesday night after my white blood counts reached 1.4, a sufficiently high level to allow me to leave the protective environment of the ward.

This is a great milestone in the treatment as it is hopefully the last time I am admitted to hospital - touch wood and all that again! Also, I convinced them to take my PICC line out - the tube that has been in one of my veins for the past 4.5 months and allows them to take blood out and pump chemicals in more easily. This has cheered me up immeasurably as I am now free and starting to feel a bit more normal. I can also take showers without having to wrap my arm in cling-film.

Have been at my family home for the past days and feeling reasonably ok. Getting tired very quickly which is to be expected for the foreseeable future and finding it difficult to concentrate on anything much. Have also got a bit of a cold which my white cells are fighting reasonably well, but combined with a low platelet count have resulted in some nose bleeds over the last couple of days. Yesterday's was quite bad so I went back to hospital for the afternoon to get some more platelets. Because my PICC line is now out, they had to put a temporary line in called a canulla; my veins aren't as good as they used to be so it took them 5 attempts to get it in and now I am left with 5 very unattractive bruises on both my arms. Oh well.

Back in hospital again this morning for routine blood test and to see the consultants. All going ok - counts are rising as they should and they are happy with my progress. Was reminded that my prognosis is still good, but only 50:50 which is what I knew already but always humbling to be reminded of it. If I do relapse then I will go down the bone marrow transplant route to offer me another chance.... let's hope it doesn't come to that!

On a brighter note, still feeling good in myself - am so pleased that I don't have any nausea or sickness like I did the last time I left hospital. This means that I'm eating very well, putting weight back on fast and slowly trying to return back to normal.

I have another bone marrow biopsy next Monday which will (a) hurt like hell and (b) check whether they can detect any cancer cells. Wish me luck!!


Eimear said...

Glad to hear you are back home Ed, and not feeling nauseous. Hurray! Also great about the counts rising. That's great news. Massive good luck for the bone marrow biopsy next week - sorry that it will hurt :( but hope it is quick and comes back with excellent results x

Russell said...

Goes without saying: good luck mate.

Alex said...

What a delight to read this update - great news!!

Anonymous said...

Hope it went well on Monday! I'm back travelling along the jubilee line again...not the same without you in the office.

Wishing you a speedy recovery!


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